Pros: -They seem to understand LC & aware of symptoms -wrote letter to help me get out of jury duty in person bc didn’t want to be reinfected -they were first org to recommend wearing compression gear incl spanx, which does help my pots and I hadn’t heard that elsewhere so that did help me -they did make a referral to an ENT for tinnitus, to be fair, and I think they were going to recommend a holter monitor but I can’t exactly recall if they referred to a cardiologist or not (I moved and life got busy and complicated) Cons: -they measured heart (EKG?), did poor man’s tilt table test, recorded my symptoms, made a few referrals but offer no real support or meds. They said all tests “normal” & even with insurance, appt cost was $600+ -the main thing they provided was a printed spiral bound booklet that mostly talks about CBT, pacing, and symptom tracking -they also recommended anti-infla­mmatory diet and drinking green tea to lower inflammation -will/cannot Rx antivirals, or LDN, or anything that could address fatigue or work at the root cause -they recommended visiting a psychiatrist or GP to get ADHD meds for fatigue, but couldn’t do the referrals I think -they seemed aware of treatments being used elsewhere, like I brought up LDN or antivirals, but they said it’s not proven so they won’t/can’t prescribe it -In essence, it was a waste of time and money, was sent away with nothing substantial (their main advice was to avoid inflammatory foods?! I already know that!) & I did not think it was worth returning and wasting more money so I never went back… I can’t really recommend them… they’re based out of a pulmonary clinic so maybe if you had breathing issues as your LC symptoms they might be able to offer more support but btw nobody masks there and I asked the NP to make and she wore a surgical so be forewarned

The only good thing I can say about this clinic is that they believe Long COVID exists. If your PCP/GP doesn't believe in Long COVID, or understand the concept of pacing, then this clinic might improve your care. Otherwise, it will probably be a waste of your time. If you go here, you'll be seen by a nurse practitioner. She's a nice person, but she won't offer you any treatments. When I went there in April 2024, I was given a basic physical and a booklet with some suggestions. They didn't order any labs or prescribe any medications. When I mentioned that the Stanford Long COVID clinic prescribed LDN, they told me they wouldn't do something like that because they "didn't believe there was enough evidence." Experienced Long COVID patients know that LDN is considered a first-line treatment with a decent amount of supporting evidence and a great safety profile. So don't even dream about getting anything exotic here like antivirals. Instead, they suggested three things: an anti-infla­mmatory diet, pacing, and green tea. Those things are fine, but all very basic stuff you can try on your own or read about online. The booklet they gave me was similar, with simple suggestions on things like sleep hygiene. I found a few things problematic about the clinic: (1) They didn't encourage protecting yourself from reinfection. In fact, the nurse practitioner told me she knew two people who had their Long COVID "cured" through reinfection. This is contrary to all evidence (every COVID infection is dangerous, and often makes people with Long COVID much worse) and might even lead some people to harm themselves by seeking out a reinfection or dropping precautions that they would otherwise maintain. (2) The booklet they gave me had a suggested reading list which included "Overcoming chronic fatigue in young people". This is a dangerous and unscientific book. You can read more about one of the authors here: https://me-pedia.org/wiki/Trudie_Chalder In addition, they were quite challenged logistically. I think I waited in the exam room for nearly an hour before I was seen.