PROS: I went there for one visit and left with an hEDS diagnosis (I'm clearly hypermobile though as well as white and smallfat, GNC & TME but did not tell them I'm not cis), as well as prescriptions for low dose naltrexone, aquatherapy, and switch to rosuvastatin from my previous atorvastatin prescription (which I feel like makes sense). I largely felt listened to (maybe 3/5 or 55-78%) compared to other experiences in healthcare by the staff there overall. Despite disorganiz­ation, the front desk staff is communicative, and they're disorganized in part because they try to fit you in ASAP/flexibly in my experience. If you can't wait in the waiting room you can definitely chill in the parking lot or bring a phone/laptop/book for the waiting room. No insurance, but not ridiculously expensive relative to some out of network specialists who can be grifters comparitively. I believe my appointment was $200-350 and insurance doesn't cover a lot of POTS/OI testing anyway. CONS: 2 stars instead of 3 due to how disorganized it is, the dismissal of possible PEM/PENE when advice analogous to GET/exercise was given; AND crucially, because out of the many clinic staff there, only 1 person (the doctor who saw me alongside DePace, who was patient, attentive, and spoke clearly) wore a (surgical) mask, seeming to put it on after seeing I was wearing an N95. They do not care to prevent reinfection for what is a long covid clinic. Disorganized meaning, getting in via phone can have a wait time of 15+min, and when you get there you can wait hours to literally all day to be seen (had a 2pm appointment I arrived on time for, left the building at 10pm after being one of the last people seen). I can tolerate that but most people more severe than me cannot. For me the big issue that made me decide to stop going besides the neuropsych­ological/physical/financial tax needed to actually be seen, was that meds like LDN and other things need consistent contact with the office to speak with (since ERs can be clueless about dysautonomia and this is a med that affects overall cardiovascular health and heart rate), and I don't have a GP or cardiologist that understands dysautonomia/LC to consult if I can't get through to DePace's office for a consult or telehealth. They said they'd mail me a heart monitor (like Zio) in 3 days for 14day monitoring, but after weeks of not receiving it I called them and asked again, they said they'd send it, then they didn't... yeah, that's not reliable enough for my level of need/care unfortunately. I already had neuro/psychiatric disabilities before longcovid, now have brain fog and not adequate support, so I (and many other LC havers) need a more responsive or reliable administrative team. When I had a physiological assessment conducted I brought an individually wrapped KN95 and gently requested the healthcare worker wear it while assessing me, she just grimaced silently at it until I said "okay, nevermind" and put it away. Otherwise was cordial to me afterwards. It sounds like they wanted to perform the TTT with me in a future visit, but after reading thesicktimes article/s on it I hope they diagnose/confirm POTS/OI/etc conditions even when patients elect not to participate it, because it appears it has affected many patients' baselines. They performed a standing test for me the first time, which is recommended for patients who can tolerate it / not in too severe condition to stand for several minutes. When I asked Dr. DePace what if exercise makes me worse because of PEM since ME/CFS frequently co-occurs with LC, I was just kind of dismissed and told to do leg raises, seemed like he assumed some deconditioning, and/or he felt fine with me risking lowering my baseline via exercise (when I am already exerting myself doing daily tasks like taking laundry up and down stairs and doing dishes). Aquatherapy as prescribed would be awesome, except again, my immune system might not be up for swimming in a public pool or beach/I would have to be masking while doing this?/I don't have access to a private pool or beach. So, not great.

This doctor himself has dysautonomia. He was the first to diagnose me with dysautonomia. He has written books on dysautonomia, recently stopped taking insurance. When I saw him it was extremely difficult to take appointments or follow ups so I stopped going there. Also you need to wait for several hours to see him despite appointment. He is old, extremely hardworking but not organized. He also diagnosed me with beginning stages of small fiber neuropathy. No other doctor has been able to do that so far. He does not know much about long covid, he never told me it is all part of long covid. He gave me low dose Naltroxene, high strength vitamin b complex and other supplements to increase nitic oxide levels. I am thankful to him.

I finally got answers to the life long issues I'd been having. They run tests there at the office, long appointments but worth it. They prescribed medication for me but can be hard to get ahold of outside of appointments